Meeting Notes from 2013


DHS / DDS Waiting List Meeting

Thursday – December 12, 2013

1:30 PM


Working application Date: Sept. 2005

Attendees: 25

Represented in attendance:

15 – Parent or Family Member

3 of the family members are from the Disability Issues Citizens Advisory Panel for DHS

3 – Self-Advocate (person with a disability)


1 – OHCA (Health Care Authority)

1 – Agency supporting those with developmental disabilities in Oklahoma

Representing those on the Waiting List – 12

Locations represented – Owasso, Tulsa, Tahlequah, Oklahoma City, Jenks, Haskell, Sand Springs, Broken Arrow, Norman, Depew

Update on DHS – Mark Jones, Director of Community Living and Support Services

DHS continues to make administrative structural changes to the agency. They have recently hired for Chief of Staff. The director continues to be engaged with the progress of the Resource Center closings and transitions along with the working of the waiting list. The director welcomes comments and concerns by contacting him and his staff through “Ask Ed

Additionally, Diana McCalment, Chair of the Oklahoma Department of Human Services Disability Issues Citizen Advisory Panel (CAP) mentioned that the CAP is another way to interact and share your family’s story or situation with any service that affects individuals with disabilities. She gave the dates of the 2014 CAP meetings and said as of right now they are all planned to be in OKC, but would post all meetings with the Secretary of state website.

DHS   Disability Issues Citizen Advisory Panel

2014 Meeting Dates

January   23, 2014July   24, 2014February   20, 2014August   21, 2014March   27, 2014September   25, 2014April   24, 2014October   23, 2014May   22, 2014November   13, 2014June   19, 2014December   11, 2014

Waiting List Update – JoAnne Goin, DDS Director – Waiting List Breakdown link

JoAnne Goin said the current number of the waiting list is 6,998 and they are working applications from Sept. 2005. She reported the DDS has increased the reimbursement to providers who are doing the psychological examination for people coming off the list. They also added 19 new providers to the list of contracted providers to do the evaluations needed for qualifications. This has improved the length of time for those coming off the list to receiving service. JoAnne also talked about her staff sending out letters to those who are within one year from the date of working application, to encourage people to apply for Social Security Disability to possibly speed up the time of processing those coming off the list. She said there are still people who don’t know they qualify, so they want to make sure they get that information. JoAnne also mentioned that SoonerCare now has an online application process for those who would qualify for SoonerCare due to the family’s income. It was also mentioned that the someone who wants or needs a paper application, they can still receive that, they will just need to call the OHCA main line. JoAnne wanted to remind people of the information needed to “work” their application and encouraged families to go ahead and get some of the items to speed up the process. Items needed are birth certificate, social security card, current IEP or the last IEP for adults, if you still have access. She also mentioned that anyone on the waiting list needs to keep their application information current and revised often to assure that your loved one can be located when their name comes to the top.

Family Questions & Comments

There was a parent there whose child was not on the waiting list and there was some discussion of what it takes to qualify, i.e. an IQ score of 70 or below and meet a certain level of delay compared to others of the same age.  There was some discussion of Department of Rehabilitative services and if they would be able to help an individual. They were encouraged to contact DRS and get more information. There was another family who had thought her child had lost Medicaid eligibility while she waited. The Health Care Authority had a community representative staff member attending who was able to help this parent make a needed connection to continue their SoonerCare eligibility.

Next Meeting

Thursday, March 13, 2014

Sequoyah Building – Capitol Complex

Room C-47 (basement)

1:30 pm



OKDHS / DDSD Waiting List Meeting

Thursday – June 6, 2013

1:30 PM

                7076 waiting_2

Working Application Date: February 3, 2005

32 in attendance

Represented in attendance:

12 – Parent or Family Member

3 – Self-Advocate (person with a disability)

1 – House of Representatives

1 – Oklahoma Senate


1 – Oklahoma Health Care Authority

6 – Agencies supporting those with developmental disabilities in Oklahoma

4 – First time attendees

Representing someone on the Waiting List – 6

Locations represented – Norman, Stillwater, Duncan, Oklahoma City, Noble, Edmond, Del City,

Agency/Organizations represented: Center for Learning and Leadership/UCEDD @ OUHSC, Oklahoma Foundations for the Disabled, Oklahoma People First, Excel Special Service, Oklahoma Developmental Disability Council,  SoonerSUCCESS, Dynasty Care Service, Oklahoma Family Network, Duncan Group Homes,  Big Five Community Services, Governor’s Blue Ribbon Panel,


OKDHS Appropriates –  Ed Lake, OKDHS Director

Director Lake talked about the appropriation from 54th Oklahoma Legislative session. He said that DHS was appropriated $44 million to continue to support the Pinnacle Plan for the Child Welfare program. Additionally, there was an $8 million appropriation to enhance provider rates. This was shared between DDSD providers and Aging Providers. He explained that this year the larger amount of the $8 million would be going to DDS providers with the requirement 70% must go to direct care staff. This can be in the form of benefits, or higher pay rate.

Director Lake continued by saying that the legislature appropriated $1 million to address the DDS waiting list. He said this was accomplished with the support of Gov. Mary Fallin, Sen. Kim David, Sen. Clark Jolley, Rep. Scott Martin and Rep. Jason Nelson.

*** Note from coordinator, I would like to thank the Oklahoma 54th Session Legislators for continuing to recognize the need of those on the DDSD waiting list. ***

Waiting List Update – JoAnne Goin, DDSD Director

Ms. Goin, spoke about how the appropriation from this legislation and last year’s appropriation was slowly moving the waiting list. They are working application from Feb. 3, 2005 and the waiting list is currently at 7,076 as of May 20th. She reported that 168 were added to DDSD waiver services, and of those 67 were worked in chronological order off the waiting list and 35 were added for emergency or for children in state custody through child welfare.

Ms. Goin continued by explaining those who came off the waiting list but did not receive waiver services;

1 – No Response or unable to contact

1 – OHCA denied (level of care)

1 – Social Security income above

9 – Family Support Subsidy chose over waiver services

2 – Chose to remain in ICF/MR

1 – Refused

Ms. Goin reported that of the first million dollars about ½ has been used. She also said DDSD currently had about 180 applications in the “working” process. She said they plan to increase the number of applications worked per month.

She said that the In-Take office handles about 350 calls from families looking for resources while they wait.

Waiting List Breakdown April 2013

Waiting List Breakdown by County

Oklahoma Respite Voucher Program – Darren Thompson, OKDHS

The Respite Voucher program offers vouchers to families who have a loved one with disabilities. You can find the application for the Voucher Program here.

The amount of the vouchers depend on the family’s income and the income must be under $60,000 annually. The amount for families who make $0 – $45,000 the amount is $400 quarterly. For the families whose income is between $45,000 – $60,000 the voucher amount is $300, quarterly. When sending a the application you will need to include the most recent income tax return form or a letter from the Social Security Administration, birth certificate and social security card. You will also need a letter from a psychologist showing your child has a intellectual disability. Mr. Thompson did say they would accept a report from the school psychometrist and the Sooner Start assessment.  Once approved your child will qualify for a year, but the vouchers will only be sent quarterly. Once you receive the vouchers they are only good for 90 days. When the quarter is over, you will need to contact the respite voucher program to assure the next quarter’s vouchers will be sent.

There were several questions from parents who wanted to know if the vouchers could be used in different ways. When asked about using the vouchers for adult day programs, Mr. Thompson said that would be an acceptable use. When asked if they could be used for an after school program for a grandparent raising a grandchild with disabilities, Mr. Thompson said yes, too. One parent asked if there was a list of individuals or centers that accepted the respite vouchers, he said there is no list available at this time. Mr. Thompson also mentioned there are some home health agencies that accept the respite vouchers for children with higher support needs.

Family Questions & Comments

Questions continued about the Respite Voucher program, which was listed above.

One parent asked about Self-Directed Services (SDS) for those coming off the waiting list. It was confirmed that families who are going to choose the SDS option when their loved ones come off the waiting list, the parent must go through the SDS training. The next training was scheduled for August.

Lastly, it was announced at the Waiting List Meeting that a true supporter of the DDSD Waiting List Meeting would be leaving DDSD to take a new job at her synagogue.  Ann Dee Lee will be missed at DDSD and by families who have been supported by Ann Dee and her willingness to continue to shine a light on the DDSD Waiting List. Thank you Ann Dee for always working to bring attention to the list. You will be missed but wishing you the best in your new adventure.

Next Waiting List Meeting:

Thursday, Sept. 26, 2013

Sequoyah Memorial Office Building

Capitol Complex – Room C-47

1:30 pm

OKDHS / DDSD Waiting List Meeting

Thursday – March 21, 2013

1:30 PM

7112 waiting

Working application date: November 5, 2004


60 in attendance

Represented in attendance:

30 – Parent or Family Member

9 – Self-Advocate (person with a disability)

1 – Governor’s Office

1 – Senate Staff


5 – Oklahoma Health Care Authority

6 – Agencies supporting those with developmental disabilities in Oklahoma

20 – First time attendees

Representing someone on the Waiting List – 21

Locations represented – Oklahoma City, Yukon, Edmond, Norman, Noble, Del City, Hobart, Stillwater, Depew, Duncan, Moore, Tulsa

Agency/Organizations represented: Oklahoma Infant Transition Program, Oklahoma Family Support 360 Program with the Center for Learning and Leadership/UCEDD @ OUHSC, Oklahoma Disability Law Center, Oklahoma Foundations for the Disabled, Oklahoma People First, Excel Special Service, Oklahoma Autism Network, Oklahoma SoonerSUCCESS, Dynasty Care Service, Searchlight, Oklahoma Family Network, Duncan Group Homes, Oklahoma Community Providers, Big Five Community Services, Oklahoma Public Schools,


Katie Altshuler, policy director for Governor Mary Fallin, announced that Governor Fallin just signed an executive order creating the Blue Ribbon Panel charged with looking at ways to address the DDSD Waiting List.  To read the Governor’s press release click HERE

Ms. Altshuler also spoke said that Gov. Fallin has also created a Task Force to look at employment for Oklahomans with disabilities. This is partnership with Oklahoma Department of Rehabilitative Services, and they will be looking at how promote and support business in hiring individuals with disabilities.

Director Ed Lake welcomed everyone to the meeting. He said he is learning a lot about disability services in Oklahoma and looks forward to learning more from the families at this meeting.

JoAnne Goin, DDSD Director, newly appointed DDSD Director. She explained she has been the Area II for many years and that she helped with the Hissom transition.

Ms. Goin said they are currently working application date November 5, 2004. She handed out information about a new web portal that allows those on the DDSD waiting list to update current information so that when their name comes to the top of the list, making contact would be smooth.

She reported that as of this date, DDSD has add 142 individuals to the DDSD waivers and 119 have been added to the waiting list. They reported that they DDSD has used more than half of the appropriate million dollars from the last legislative session. Marie Moore, with DDSD, reports that locating individuals after being on the waiting list for over eight years is the greatest challenge they are having. She reported that only 6 out of about 100 have not qualified for the waiver services for either Medicaid eligibility or the diagnostic requirement.

JoAnne Goin also brought information and applications for the Respite Voucher Program, and encouraged everyone on the waiting list to consider using this resource to give respite themselves and their loved ones respite while you wait. Ms. Goin also reported that as of right now, DHS has extra funds to support the respite vouchers.

You can get more information at this Letter

Click here for the Download – Respite Voucher Application 01-28-13

Explanation of the Waiting List Breakdown

Current DDSD Waiting List Breakdown Waiting List Breakdown_010713

DDSD Waiting List Breakdown by Counties_Summary of waiting list 010713

Family Questions & Comments

There was several thoughts and questions brought up at this meeting. One family talked about the challenge they continue to have the TEFRA application process. One person suggested that someone start trying to make contact with those on the waiting list so their contact information can be current. It was mentioned that DDSD has partnered with the Oklahoma Family Network to connect new parents calling into DDSD with other parents who have children with disabilities.